I forgot to add in my last post that I discovered a 2 page spread in Good House Keeping Magazine, on fibromyalgia. It promoted the website fibrocenter.com. Pfizer pharmaceutical, who sponsors the website is the first pharmaceutical company to have a drug approved specifically for fibromyalgia. They are helping to make the disease more recognized and make help available to more fibromyalgis sufferers. At least 6 million people in the U.S. have fibromyalgia, with 80% of them being women. Alot of people are misdiagnosed, or go untreated, so this website should be a great learning tool and support system. I know from personally experience the frustration of not having a diagnoses, when something is really wrong. I went for 4 and 1/2 years this way. I think it is so important to have a support system when you are going through any kind of illness. Talking to others patients on valcyte and having their encouragement has literally saved me just knowing that I'm not alone in this battle. My extended family and several friends have been so supportive through out this trial of valcyte. I feel so blessed to have those around me understand because I know of patients who have no support except for those online and it just breaks my heart. I've talked about this website before, immunesupport.com. They have a great message board not only for CFS but for the following as well:
AIDS
Alzheimer's
Arthritis
Cancer
Candida
Depression
Diabetes
Lupus
Lyme Disease
Parkinson's
Sinusitis
Look for the ad in magazines and spread the word. I will just add that I went to the acupuncturist yesterday and my pain levels have gone down today! I have another appointment tomorrow. I did acupuncture a few years ago and he gave me some Chinese herbs that really helped me and then I had to stop going when I went off to college. I know this acupuncturist suggested herbs as well, but he wants to make sure they don't interfere with my other medications, which I really appreciated. Holistic/alternative health has always been fascinating to me, probably from my Aunt's infuence. She was always trying unique things for her health. So I like to have one foot in the western medicine and the other in the alternative world. I'm excited to see what happens :)
Wednesday, June 18, 2008
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